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From: Amy
Mary,
I was told I suffered from N.C.S. 2 years ago. I actually started experiencing symptoms 3-4 years ago when my mother became terminally ill. I chalked my symptoms up to stress. However, the dizziness came more frequently (driving, sitting...) and severe. I started walking into things. I never passed out, I try to get help before I fall over. I get shaky, nasueas, cold and fatigued. This is how I know my pressure is dropping. I had a positive tilt table and was put on Theodure which, I couldn't take. Then, Beta Blockers. I stopped them after a couple months, they caused terrible GI discomfort. Now, I started weight training and had a bad episode last week. I started back on the beta blockers and will be following with an EP doctor tomorrow. I think I will be started on Midadrine. I have to say, this condition has pretty much disturbed my life. I don't like living alone, I am afraid to go anywhere, I don't know when I'll have an episode. I feel most people think I am a hypercondriac (sp?). It is a frightening experience and I feel alone. I am wondering how you feel about living with the condition, is there a norm for symptoms when it comes to this?