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From: Grace
Someone please help! I'm 18 and was diagnosed with VVS after a positive tilt table testa few weeks ago. I first started experiencing syncope in May when my psychiatrist upped my dosage of Neurontin to 1600mg/day. I guess my body just couldn't take such a high dose. I began passing out after getting up from bed, twice in front of my mom. Later on she told me that I didn't just pass out, but when I was down, I was having convulsions. Naturally, I got scared and went to see my doc, who sceduled an appt. with a neurologist. the neurologist percribed a tilt table test and a 24-hr eeg. Now he's telling me I need to see a cardiologist, but I haven't gotten a referral yet. I know I need to change my diet, but that's pretty much impossible to do because of our very low income. Although I haven't had any seizures since the ttt, i get close calls all the time. It's gotten to the point where I have at least one close call every day. I'll feel like I'm floating at first, then my body gets all tingly, I feel nauseous, and begin to lose my vision (seeing black and grey checkers). I know I need to lay down at these times, and it helps, but why is this happening to me so frequently? I'm off the neurontin (and many other meds as well), so I doubt it's drug related. I desperatly need help as I can't drive and am about to lose my job ( just got hired!), not to mention I have enough problems as it is. What could possibly be causing such a severity of symptoms? Is it normal to have seizures when passing out, or is this some kind of horrible mutation of VVS? I will greatly appreciate any answers. Thank you.