Vaso-Vagal Discussion

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Vasovagal Seizures? PLEASE HELP ME!

From: Grace


Someone please help! I'm 18 and was diagnosed with VVS after a positive tilt table testa few weeks ago. I first started experiencing syncope in May when my psychiatrist upped my dosage of Neurontin to 1600mg/day. I guess my body just couldn't take such a high dose. I began passing out after getting up from bed, twice in front of my mom. Later on she told me that I didn't just pass out, but when I was down, I was having convulsions. Naturally, I got scared and went to see my doc, who sceduled an appt. with a neurologist. the neurologist percribed a tilt table test and a 24-hr eeg. Now he's telling me I need to see a cardiologist, but I haven't gotten a referral yet. I know I need to change my diet, but that's pretty much impossible to do because of our very low income. Although I haven't had any seizures since the ttt, i get close calls all the time. It's gotten to the point where I have at least one close call every day. I'll feel like I'm floating at first, then my body gets all tingly, I feel nauseous, and begin to lose my vision (seeing black and grey checkers). I know I need to lay down at these times, and it helps, but why is this happening to me so frequently? I'm off the neurontin (and many other meds as well), so I doubt it's drug related. I desperatly need help as I can't drive and am about to lose my job ( just got hired!), not to mention I have enough problems as it is. What could possibly be causing such a severity of symptoms? Is it normal to have seizures when passing out, or is this some kind of horrible mutation of VVS? I will greatly appreciate any answers. Thank you.

This web site is not a substitute for a thorough medical evaluation and diagnosis of your vaso-vagal type symptoms.  Medical treatment and diagnosis is the only acceptable initial response to these serious symptoms since they might present from any number of life threatening and treatable illnesses. It is for you and your physician to rule out more serious illnesses; Please don't use this online forum as an alternative to getting responsible medical attention and being under the care of a physician for the duration of any unknown, suspected or dangerous vaso-vagal syndrome symptoms.
Last changed: June 22, 2007