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From: kimee (22)
Date: 7/26/01
Time: 1:13:01 PM
Remote Name: 141.150.84.172
Hi Jen, I hope you are still checking this board and get this message. I"m 22 and have also been told I have a form of VV (NMH) neurally mediated hypotension. I just wanted to write and tell you you're not alone, my doc did all these tests and all came back normal-I was totally frustrated-I even lost my first job because of my being sick and almost fainting everyday!! finally, I got a referral to see a cardiologist and he sent me for a tilt table test and now a 30 day heart monitor-he had a suspicion my symptoms-which were almost exactly like yours-might be a vaso-vagal episode. Please don't lose hope-it's not all in your head-you just have to find a doc that will listen and one that has some knowledge of VV. Also, I dont' know if you found any info on the vagus nerve, but I do have some knowledge of this as I'm in (or was in) the healthcare field. The vagus nerve is one of the 12 cranial nerves-it controls all of our basic bodily functions, such as heart rate , blood pressure, GI function, and bowel/bladder function. How efficient ;) -one nerve to control all of this-god forbid it should malfunction-haha:) anyway-it is also understandable why you feel faint before /during a bowel movement-during this time, blood pressure actually lowers. well, i do hope you get this and it helps a little. Just know that you're not the only one your'e age dealing with this. If you want to talk more, we can always email (not sure if i left that on my last post (22 with nmh). ALso, you might want to check out www.NDRF.org -it gives a good overview of what disautonomia is and the different types. good luck! -kimee