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Time: 2:52:16 AM
Remote Name: 126.96.36.199
Hi Mary It does make more sense to start here at the bottom. It takes ages to find the place in the middle! Yes I had an EEG but that was many years ago when I was in hospital. I woke up one morning and had an episode. During the episode I wet myself. As I was in a private room no one saw me so after I got a nurse and told her what happened. She was not very nice, she looked like I was just making an excuse for wetting the bed! Anyway they arranged for me to go and get an EEG. From what I remember at the time my brain pattern showed some abnormality but it was not not in keeping with Epilepsy. They said they did not know what caused it but I was put on phenotoin (sp) It did not agree with me. They then put me on Carbamazapine and I have been on it ever since. I only have tests for my blood levels. The last time I was there they said the amount in my blood was not therapeutically enough and was doing me no good. I've never had another EEG. I want to go and see a specialist again but the Dr keeps stalling. I have seen my cardiologist twice - for all of two minutes each time afte a 100 mile trip to see him. He can't get me out the door quick enough. I have AF fullstop, no structural heart disease or abnormalities and if I have the symptoms I say - its nothing to do with my heart. He even said that I might be having panic attacks. That really got my goat up, as initially I thought they were. It was only when the DR took my BP one time and said something funny was happening with my heart that I was checked for AF. (this was after 10 years of me being patted on the head and told not to drink coffee etc). He told me that is was not a panic attack - it is coming from your heart. I can't see a specialist without a referal from my GP and I live in a rural area in NW Scotland, so I can't change my DR. I feel I'm up against administrative barrier. The GP said not to worry its obviously not fatal as I've had it for so long - she wouldn't say that if she knew what I went through. Thanks for listening.