Vaso-Vagal Discussion

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To Mary

From: Fran
Date: 2/25/01
Time: 2:52:16 AM
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Hi Mary It does make more sense to start here at the bottom. It takes ages to find the place in the middle! Yes I had an EEG but that was many years ago when I was in hospital. I woke up one morning and had an episode. During the episode I wet myself. As I was in a private room no one saw me so after I got a nurse and told her what happened. She was not very nice, she looked like I was just making an excuse for wetting the bed! Anyway they arranged for me to go and get an EEG. From what I remember at the time my brain pattern showed some abnormality but it was not not in keeping with Epilepsy. They said they did not know what caused it but I was put on phenotoin (sp) It did not agree with me. They then put me on Carbamazapine and I have been on it ever since. I only have tests for my blood levels. The last time I was there they said the amount in my blood was not therapeutically enough and was doing me no good. I've never had another EEG. I want to go and see a specialist again but the Dr keeps stalling. I have seen my cardiologist twice - for all of two minutes each time afte a 100 mile trip to see him. He can't get me out the door quick enough. I have AF fullstop, no structural heart disease or abnormalities and if I have the symptoms I say - its nothing to do with my heart. He even said that I might be having panic attacks. That really got my goat up, as initially I thought they were. It was only when the DR took my BP one time and said something funny was happening with my heart that I was checked for AF. (this was after 10 years of me being patted on the head and told not to drink coffee etc). He told me that is was not a panic attack - it is coming from your heart. I can't see a specialist without a referal from my GP and I live in a rural area in NW Scotland, so I can't change my DR. I feel I'm up against administrative barrier. The GP said not to worry its obviously not fatal as I've had it for so long - she wouldn't say that if she knew what I went through. Thanks for listening.

This web site is not a substitute for a thorough medical evaluation and diagnosis of your vaso-vagal type symptoms.  Medical treatment and diagnosis is the only acceptable initial response to these serious symptoms since they might present from any number of life threatening and treatable illnesses. It is for you and your physician to rule out more serious illnesses; Please don't use this online forum as an alternative to getting responsible medical attention and being under the care of a physician for the duration of any unknown, suspected or dangerous vaso-vagal syndrome symptoms.
Last changed: June 22, 2007