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From: Angela : AngieM666@hotmail.com
Date: 2/20/01
Time: 11:28:55 AM
Remote Name: 128.205.180.216
hi. I'm 18 years old, I have been diagnosed with V-V. I have had it for as long as I can remember. It took a long time for them to ever figure out what I really had. They wanted to put a pace maker in. Has anyone else had this option too? Does it work? They put me on salt and florinef, but that doesn't really seem to work all that well. I use to pass out in school almost 5 times a week. I would be out cold on the floor for 5+ minutes. I tend to shake alot when I'm coming to. Doctors don't understand my disease, and they think I'm having seizures. I don't believe I am. I guess it may be because I am very disoriented when I come to, and I just want to sleep (does anyone else just get knocked out when they pass out?) I just don't know what to do anymore. I'm at college and I'm so scared that something awful is going to hapen and no one understands what I have. I guess I would just love to talk to someone else with vaso vagal. my email is AngieM666@hotmail.com I would love to hear from some one. thanks for your time.