[ Home | Contents | Search | Post | Reply | Next | Previous | Up ]
Time: 6:10:59 PM
Remote Name: 188.8.131.52
I'm a mother of a young child with some "iffy" vaso-vagal-type symptoms. I'm really still in the beginning stages of learning about the issues, diagnostic techniques, potential treatments, etc. I'm certainly not an expert!
It would be very helpful for your friend to get a copy of her pediatric medical records. If she can determine what type of seizures she had as an infant/child, she might know immediately whether there's any connection with her current symptoms.
I have found these websites helpful in my own research. Maybe they will be helpful to you, too:
http://www.ndrf.org National Dysautonomia Research Foundation. There's a discussion forum and lots of helpful info.
http://www.ninds.nih.gov/health_and_medical/disorders/dysauto_doc.htm A government-sponsored site, part of the National Institutes of Health
http://www.stars.org.uk (devoted to helping infants & children with "RAS" -- a type of seizure caused by a dysfunction in the autonomic system ... usually triggered by pain, surprise, etc. This website doesn't open properly with my Netscape browser, but opens perfectly with Internet Explorer 5.0.
http://www.delphi.com/n/main.asp?webtag=faintersunited&nav=start Fainters United discussion & support forum
Good luck with your research!