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Time: 9:58:54 AM
Remote Name: 126.96.36.199
I wanted to reply to the people that are on this website that have noticed that the VV often happens right before a bowel movement. I have suffered from Irritable Bowel Syndrome for over 20 years. About two years ago I had my first VV episode. I had the sweating, so severe I was completely wet in about 10 minutes, very severe cramping, and dizziness and inablility to speak. I remember thinking I need to tell my husband I need to go to the ER and being sort of out-of-it but never losing consciousness. It passed it about 20 minutes and then I slowly began to feel better. The gastroenterologist that I see said it was a Vaso Vagel nerve spasm, due to the severe cramping associated with my spastic colon. He said the pain is so severe that your body starts to shut down. I have had two more attacks since then - both when my husband and I were traveling. Now when I know we're going to be traveling I take a time release capsule of hyoscyamine .375 every twelve hours. I also have a prescription of the Lotronex 1mg and if I feel really severe cramping I will take a half tablet.
I know this doesn't address those diagosed with a heart related VV problem, but for those of us that have IBS and have had an episode of VV, it was reassuring to me to know it was related to my IBS.
I wonder if there isn't some relationship because a lot of people on this website will say that it happened or sometimes happens right before a BM.
I want to say again how helpful this website has been for me and thanks to everyone who responds.
From: tracy hennigar
could this be a narcoleptic/cataplectic reactiona dn not a vago response, we have a wide family hx of narcolepsy and sometimes the bodies response to pain or certain triggers can set off such a reaction, have been broadening my own views on the two and narcolepsy of course is lo9cated at the base of the brain and can be similar to the vago, i have had experences in witnessing both several times