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From: Lauren
Date: 8/23/00
Time: 10:02:05 AM
Remote Name: 205.188.193.51
Had a frightul thing happen yesterday with my three year old son. He couldn't stand and fell to the floor, crying that his tummy hurt. Took him to the bathroom to go potty or vomit--neither happened--he fell limp in my arms, white as white can be, no color in lips at all. His eyes rolled back and he continued to be like a ragdoll. He couldn't speak. I kept trying to keep him awake, afraid if he went unconscious, he wouldn't wake up. His pupils were going crazy--big, small, big, small, and then one small one big-- Thought at first it was a seizure, but turns out it was V-V. After paramedics left (he was fine by the time they arrived), I took him to the doctor immediately for a full look over. She stated that it sounded like V-V from my description. Once I calmed down and thought about it, I recognized it as something I have experienced throughout my life. My mother has also lived with it. I never knew that it actually had a name--I just attributed it to fainting very easily and/or anxiety, as did my mother. Now that I know there is a name for it, what can be done, if anything? It must be hereditary as 3 generations in my family have it. My stories range from sitting at the dinner table, to playing a game of checkers and falling over backwards, to curling my hair and waking up on the floor. I am now 31, and my episodes have diminished with my last uncontrollable one occurring over a year ago. I am able to recognize it now, and can usually control it. I focus on calming myself and reducing my heartbeat, not allowing myself to be afraid of or anxious about the LOUD monotone ring in my ears. Again, my question is, what can be done? Are there any more websites out there regarding this? Thanks so much.
From: connie hetherington
On Oct. 8 2002 I had some type of attack similar to your syndrome when I got up in the night to get a drink. i was fine till I got into the kitchen then I suddenly got very weak and disorientated. Every thing seemed to be so far away and i couldn't seem to hold on to anything. I dropped my milk and looked at it as if I wasn't quit sure if I should pick it up or leave it there. I made it to the sink and reached for a glass which I dropped also. Next thing I know My legs warn't woking and I was going down. Next thing I remember is wking up on the floor. I dragged myself into the dinning room and up into a chair where my blood pressure machine was. By than I was cold and clammy. I took my blood pressure and it was 54/40. Neddless to say I was scared. I than woke yp my girls and they called the ambulance. They told me that it was probably a Vagal response to the pain I'm always in. It's been 3 days now since it happened and my doctor has given me a CAT scan if the head, but I am still weak and unbalancd even now. Thak You for listening.