Vaso-Vagal Discussion

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vaso vagal related?

From: WH
Date: 6/30/00
Time: 7:55:02 PM
Remote Name:


On February 9, 1999, I came down with an ear ringing that seemed a lot like hearing-loss-related tinnitus. being just 29 at the time, ad never a frequent night-clubber or patron of other places where dangerously high sounds are inescapable, I was worried. About the same time, I came down with a cold and felt a bit dizzy, a little slow. However, I became really concerned when I overcame the cold, but the ear ringing and vague sense of dizziness stayed with me. I once nearly passed out in a movie theatre a few months prior, which I thought was realted to watching one of those giant screen 3-D imax movie that wreaks havoc with y7our orientation. But at this point, having gotten over the cold, I expected the other symptoms to disappear. I saw a doctor who referred me to two specialists. One tested me for balance and reflex dysfunctions. The other tested my hearing, including some heavy duty test where 20-30 electrode were attached to my head; this was supposed to reveal anything from mild ear dysfunction to an acoustic tumor, I was told. Both tests came back negative. Furthermore, although I seemed to have classic hearing-loss related ear-ringing, I passed the hearing tests without making a single mistake...and I took the test twice! This diagnosis (or lack thereof) put me at ease, ruling out my worst fears. I was almost wishing that something easily identifiable had happened, like my eardrum bursting, so that I would KNOW what was causing this ringing plus mild dizzy-like feeling I had constantly had ever since February 9th. Not knowing what next to do, I went as far as to be tested for the worst diseases involving immune response, and those came back negative as well.

About a month later, I went to visit relatives in another country (outside the US) and met a specialist there as well to see if anything might be discovered from outside the HMO-dominated medical culture that does not seem to recognize any illness that defies its insurance-motivated cookie-cutter style of fitting symptoms with anything that does NOT involve expensive tests. Can you tell I am a little frustrated? This specialist found nothing wrong either, and subjected me to many of the same tests I had taken. SO, now I find myself in Japan, have been hoping that the symptoms would disappear on their own, and after a year, I am wondering if I will be stuck with this half-ill feeling for the rest of my life, an illness that medical wisdom concludes does not exist.

In short the symptoms are:

Feeling of "fullness" in my ears, as if fluid is caught in them - none has ever been observed by the specialists

Ringing in my ears, more in the right ear than the left - this has not abated since Feb 9, 1999

A dizzy feeling that forces me to compensate all the time. For example, standing on a train platform and going into a gaze, or staring at a train whizzing by makes me start to feel wobbly, forcing me to quickly shift position to avert passing out.

I do not and cannot sleep more than 5 hours in a row.

Ever since Feb 9, 1999, I cannot remember a single day when I did not wake up feeling tired immediately after getting out of bed, or an hour or two later. But, it always happens.

Lastly, I have been ignoring these symptoms, trying to "think" them away. However, this strategy is not working. I exercise vigorusly, if for no other reason because the adrenaline rush makes me feel 100% well, as opposed to the 90% that I have otherwise lived with since Feb 1999. I don't know what to do. I keep saying that maybe this is just a part of getting older and not being an invincible teenager or twenty-something anymore. However, I suffer most when I am sedentary and when there is silence around me, because THEN there is nowhere I can run from the reality of a yearlong illness I desperately want to cure or at least alleviate. Sleeping pills, antibiotics have not worked. I have had an EEG but, since this condition stays with me, the negative result would seem to indicate that my head is okay. But of course, all is NOT okay. I have not had an MRI, but I don't know if that would help. HELP!!!! Does anyone have any suggestions?

VV Or what?

From: PJC


Hey all. This is a great resource and I hope it can help me figure out my problem.

In april i was sick, flu and cold, and went to the DR. In the office I passed out cold and had a seizure. Apparently as it happened they didnt lower me to the ground fast enough and this caused the blood to flow away from my brain. Took me to the ER, had a CT, EKG, Xray. CT found a coincidental cerebral cyst but the neuro dr said its not related.

About 3 weeks ago, I was on vacation and got up at 3am to go to the bathroom. In the middle of it I sensed that I was going to pass out and next thing I know i was on the floor. My friend said that my eyes were open, i was struggling to breath and when i came to i was disoriented and like a "caged animal" Earlier that evening I had drank about 1liter of beer and a margarita - as well as the fact that i had a cold and slight fever (I know, i'm stupid).

Finally, two nights ago, again, recovering from a cold that had me feeling bad all week, I woke up in the middle of hte night and feeling like I was going to pass out. Ears ringing, etc. I stayed in bed, put my legs up, and after 10 minutes it went away. The next day i was EXTREMELY tired however and couldnt really do anything.

Does this sound like VV episodes? I take my BP regularly and notice that its often times HIGH. 150/90 or so. Also, these episodes are causing anxiety - which is the toughest part. Scared to do what I used to do! Figuring out what my triggers are is helpful, but its still holding me back.

Any comments are welcome! Thanks!

This web site is not a substitute for a thorough medical evaluation and diagnosis of your vaso-vagal type symptoms.  Medical treatment and diagnosis is the only acceptable initial response to these serious symptoms since they might present from any number of life threatening and treatable illnesses. It is for you and your physician to rule out more serious illnesses; Please don't use this online forum as an alternative to getting responsible medical attention and being under the care of a physician for the duration of any unknown, suspected or dangerous vaso-vagal syndrome symptoms.
Last changed: June 22, 2007