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Time: 1:35:34 PM
Remote Name: 18.104.22.168
It was interesting to read in the Re Cronic Fatigue about the abnormal red blood cells bit.I have posted another post telling you about my experience with Vasa vagal Attacks but then I read about the blood cells bieng abnormal. 27 years ago I was diagnosed as being "A Typical" the tests showed up that I dont make the right amount of red blood cells and I make too many white cells.I am also allergic to "Scholine" which is a muscle relaxant used in a general anesthetic.Whe you are given an anesthetic they have to give you a muscle relaxant to be able to flatten your lungs to get the tube down into the lungs.Your lungs come back to normal after a few seconds. if I am given "Scholine" my lungs stay inactive and they have to revive me.The doctors said it all has to do with me being "A Typical" which is to do with the blood cells? The Neurologist I have seen has connected all these things to Vasa Vagal Attacks. I am a wierd son of a "B" but have learnt over the years to cope. As far as the attacks go if I sit down, no matter where I am, and breath very deeply and slowly I have found that I can control them and not get to the passout stage.It is what I call "mind over matter" It may look funny if I am in the middle of the high street but who cares. It is better to look funny than to loose control of my bowels in the shopping center!
I was just diagnosed with V-V syncope after a number of tests, including an EEG and MRI. The doctors were convinced that my symptoms seemed more like a seizure than v-v but when the tests came back normal with the brain, they decided it was v-v. I did pass out with the tilt table test but only after they sprayed Nitroglycerin under my tongue. I have had this problem since I was about 8 years old and I'm 38 now. It has gotten progressively worse over the years. One weekend I blacked out about 30 times. Sleep deprivation seems to be a trigger for me. I had to be sleep deprived for my EEG and I blacked out 8 times that night while staying awake. I do not completely faint though. Does anyone else just black out? I know it's going on. I cannot see but I carefully place myself in a safe position on the floor or leaning on a table until the episode passes. I feel numb and when I'm coming out of it my body is convulsing. Does anyone else have these kind of symptoms?