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From: Charlotte
Date: 5/10/00
Time: 1:02:46 PM
Remote Name: 203.101.120.126
I started having these attacks when i was about 11years old.Roughly when I started menstruation.They always start with a horendious pain in the abdomen. If I can get to the toilet in time I dont mess myself as everything and I mean everything, goes to liquid before I pass out. I sweat cupfuls of liquid, get the usual buzzing in my head, just like what you hear inside your head before you have an anesetic.And then I pass out.I am only unconciouss for a short while BUT if someone actually moves me Before I am ready to be moved I pass out over and over again.Each time concious for a few seconds between each passout. After all this I am so weak that I just have to lie where I am.I had one of these attacks in a doctors surgery once and they said that my blood pressure was so low it nearly didnt register.That only lasts for a few seconds as well.As I have grown older these attacks has grown less frequent, I used to get roughly 2 a week but now only a couple every year. In September 1998 I had a "Coloid Cyst" removed from the center of my brain and I havnt had a full attack since.I have got the pain and sweating but I dont pass out anymore. Maybee this has something to do with it? Charlotte
From:
I was just diagnosed with V-V syncope after a number of tests, including an EEG and MRI. The doctors were convinced that my symptoms seemed more like a seizure than v-v but when the tests came back normal with the brain, they decided it was v-v. I did pass out with the tilt table test but only after they sprayed Nitroglycerin under my tongue. I have had this problem since I was about 8 years old and I'm 38 now. It has gotten progressively worse over the years. One weekend I blacked out about 30 times. Sleep deprivation seems to be a trigger for me. I had to be sleep deprived for my EEG and I blacked out 8 times that night while staying awake. I do not completely faint though. Does anyone else just black out? I know it's going on. I cannot see but I carefully place myself in a safe position on the floor or leaning on a table until the episode passes. I feel numb and when I'm coming out of it my body is convulsing. Does anyone else have these kind of symptoms?