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From: sandy
Date: 4/10/00
Time: 4:02:29 PM
Remote Name: 216.14.0.177
John, Have you ever noticed if these happen after you've had a "fountain" coke or other cola? I try not to drink anything with caffeine in it, and two of my four episodes have happened while traveling and yes, eating in a crowded noisy restaurant. However, the other two episodes happened at home after a very bland type meal. Who knows?
I have had IBS for over 20 years, so nothing it does to my body surprises me much. Sandy
From: Sheryl
I am just amazed to find this site. I have experience most of the symptoms I have read here including seizures, oxygen depletion (twice verified in arterial blood gas studies), fainting and near fainting episodes brought on by pain (especially in fingers), episodes occur most before periods (diagnosed with catamenial seizures - at menstral time due to increase in estrogen. That's why I did best when I used a diet that made my period go away -but not healthy). I also have cardiac dysrrythmias, mild/moderate agoraphobia and generalized anxiety disorder (self-diagnosed, but I know my anxiety levels). I live in fear all the time. I even developed a fear of food b/c of how it affects me. My blood pressure is always extremely low and sometimes drops to dangerously low. I was going to have a cardiac ablation but my neurologist suggested a vagus nerve stimulator implant instead. I am on injections for stiff muscles and spasms (most painful in jaw), and for seizures. They also can't figure out why I have to take outrageous (lethal) amounts of potassium to keep my heart regular and my muscles working. I have decided to have the VNS implant surgery. After reading this web site I feel like it is the right decision. The vagus nerve, that controls this portion of the autonomic nervous system, innervates the stomach, heart, lungs, and base of brain. It determines many responses, including blood pressure, and is probably behind much of these problems. Thank you for this web site; it has helped me be sure. I'll let you know how it goes.