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From: Susan
Date: 3/10/00
Time: 5:21:27 PM
Remote Name: 205.188.199.22
I'm going to post my own experiences later, Wendy, but just found this website and am reading all here. After my first childbirth and episiotomy, I had considerable pain lasting for too long to be normal. I went back to the OB, and he said I'd had a nerve ending(s) heal into the scar tissue and that was what caused the pain. He treated it -- successfully -- by injecting cortisone into the area. Cortisone stings like all get out, and I nearly passed out from the cure. Just a thought, totally unrelated to VVS. Good luck to you!
From: CH
WOW! I had no idea there were so many people with the same symptoms or experiences as me. I have been "dropping" as we call it in our family since I was about 18. Before that I didn't "drop" but would go white as a sheet, turn either cold or clammy or hot & sweaty and have to lie on the floor. It is heriditary, women in our family cannot stand still or we will "drop". I have "dropped" in showers, just walking, church, "dropped" after dropping when someone tries to move me. I have two purchased front teeth from "dropping", I have been in the hospital from dropping. The most recent episode was in front of my husband who had never had the privilege of seeing me drop. I got up out of bed, rushed to the bathroom (thought I had to go) came back to the room crawling on the floor and passed out! Apparently I terrified the hell out of him, I was breathing erratic and he thought I was having a seizure. After calling the paramedics, I awoke to find myself surrounded by the paramedics, police & fire department which was quite a shock since my family was so used to it no one had ever been called before. I must say that I was glad that they were there, because I managed to pass out again and when I came too I couldn't move or lift my head. I agreed to go to the hospital but halfway there in the ambulance I thought I was fine and should maybe ask them to take me home, until I realized that I could not lift my head because the pain was so severe. I was given pain killers at the hospital just so that I could be moved to have tests done. Of course nothing was found that would cause concern, "I just fainted again". The strange part of this episode was that for many weeks after that I felt like I was in a daze. I didn't feel right, I truly felt like I had died and was just dreaming that I was alive. I kept asking my husband if he was sure that I wasn't dead. I passed out again once more a month later after that episode(in the bathroom of course where all good fainters faint) and nothing has happened since then. That was 1 1/2 years ago. But you never feel quite right as a "fainter". I also experience choking on food, it will occur regularly for awhile and go away and then comes back. The choking is very scary because I literally cannot breathe until I manage to clear the path. I am usually able to get to the bathroom to clear it but on occasion I have had to "gag" right at the table, which is always extremely embarassing, especially at a restaurant or Thanksgiving dinner. The reason I found this site is because I was woken up at 6:00 a.m.today by my mother telling me that my brother was in the hospital because his esophagus was blocked by food, apparently he too has been choking on his food. She believed that was related to Vaso Vagel, which she was aware of because her sister in England has it, and now has a pacemaker for it. I have not found anyone with similar symptoms of the choking. Any input from anyone who has had similar experiences would be helpful.Thankyou.
From: kbrubaker
I was diagnosed with vaso-vagal a little over a year ago. It was a long process that took a year and several specialists to diagnose. I have had some pretty scary attacks both before and after. The cardiologist that diagnosed me assured me that it would never happen while I was driving or just sitting. I am five months pregnant and recently started to have the "starts" of an attack, anywhere and several times in an hour. I have the heart palpatations and lose my breath for a second, then it stops. Is this still vaso-vagal? My OBGYN said that everything has change so much during pregnancy that it is likly that it has just gotten worse and that I shouldn't worry. I haven't had a full attack since I have been pregnant, if one occurs, can it harm the baby in any way? Not many doctors seem to know what this is or what is ok and what is not. I don't know whether to take his word for it or not.