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From: Patrick Miller E-Mail www.tqi@raex.com
Date: 3/8/00
Time: 5:32:12 AM
Remote Name: 152.163.206.177
I was diagnosed with vaso-vagal reflex at the cleveland clinic and was given a couple of different medications that have failed to help. I have been fighting the symptoms for 2 years and they are getting worse. I am 31 years old, a PGA golf professional, and am unable to play golf with-out feeling and fearing I will pass out. Please respond with anything that may help me.
From: Gerry
Hi Anne - it is so good to hear that someone else has the same as me. Th only thing is I have not been diagnosed with any heart problems, although I have seen 3 different cardiologists. I do have very high cholestorol though. What is happening to you now? Even today I felt a weakness in my legs and my blood pressure was very faint. My heart began to race and I thougt I was going to pass out. It is awful. I have just found out I am pregnant and although delighted, worried that this may harm the baby. Bye for now Gerry
From: jaimie
I've been diagnosed as having severe vaso-vagal recently, butI've had it since I was about seven years old. To be quite honest, it scares me to death that there is nothing I or any one else can do except "eat salt", "stand up slowly", and "keep your blood pressure up". I've actually hit my head on various occasions, leading to my being blacked out for longer than the normal few seconds to few minutes. I'm only sixteen years old, and I don't want this for the rest of my life. I don't even know how to live with this. Tonight I had one of my particularly bad episodes, and it is so scary to be alone. I'm afraid to take a shower without someone there, because I've fallen in there before! The only thing that keeps me from just conking myself out, is that I can usually tell when it's about to happen and can curl up into a fetal position. And if I can't, and I hit my head, my wonderful cat goes up to the nearest person and starts meowing really loud so that the person knows I'm in trouble. I would really like to hear from someone who has had vaso-vagal their whole lives tell me how they survive this, or if I can get over it. Please, I need some (for lack of a better word) help. jaimiemeyers@aol.com