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The New York Times
July 24, 1998, Friday
Section A; Page 21; Column 2; Editorial Desk
Hippocrates vs. Big Brother
By Bernadine Healy; Bernadine Healy, dean
of the Ohio State University
College of Medicine and Public Health, was director of the National
Institutes of Health from March 1991 to July 1993.
The Health Insurance Portability
and Accountability Act of 1996 requires
that all Americans have an electronic
code known as a "unique health
identifier." Assigned at birth, it
would enable the creation of a national
data bank of all our individual medical
encounters.
The identifier has been lauded as a means
for rapid transfer of records
among different health providers or
insurers, a more efficient way to bill
and a great boon to medical researchers,
who would have access to unlimited
data on our diseases, test results and
treatments.
The unease is that this would be an
invasion of an individual's most
intimate personal life -- and be open to
abuse.
"Privacy" may seem an overused
word these days, but the demand for honoring
secrets between a patient and doctor is
one that transcends discipline,
time and place. There is perhaps no
greater invasion of privacy than what
occurs when people, because of mortal
need, allow doctors to intrude into
every facet of their lives, ask sensitive
and deeply probing questions
about their emotional and physical health
and that of their families, and
examine their naked bodies from head to
toe.
Countless sensitive issues can arise in
the course of caring for patients,
including information on sexual
practices, sexually transmitted diseases,
impotence, abortion, depression, suicide
attempts, alcohol abuse, illicit
drug use and a range of potentially
prejudicial illnesses, procedures and
medications.
The only purpose of the intimate
portraits that doctors obtain is to gain
knowledge to help their patients. Indeed,
the promise -- affirmed by every
doctor when stating the Hippocratic Oath
-- "that whatsoever I shall see or
hear of the lives of men, which is not
fitting to be spoken . . . I shall
keep inviolably secret" is not for
show. It is about the privileged human
encounter inherent in the practice of
medicine.
If that encounter becomes a threat to an
already vulnerable patient, both
the doctor and the patient are tempted to
subvert the record to protect a
confidence.
As doctors, we are all concerned about
modern-day assaults on these sacred
secrets of the patients in our care. The
recognized need for health care
workers within medical centers to review
charts for medical oversight, for
billing and to provide select information
to health maintenance
organizations or insurance companies has
raised concern about the potential
for abuse and the need for stricter
regulation of the use of medical
records.
To use the force of law, regardless of
the wishes of the patient, to
command the entire contents of a medical
record and place it in a single
database under Federal control only
increases those concerns. The
Government does a lot of things well, but
keeping secrets is not one of
them.
Recent history shows a track record of
abuse of F.B.I. records, I.R.S.
files and Government personnel records,
with little or no avenue for
individual redress. Furthermore, most
people see the Government as simply
too remote, too large and too impersonal
to have the medical secrets of its
citizens in its control.
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