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From: Manna
How is your daughter doing now? I have had vaso vegal syncope for many years and now recently began to have grand mal type seizures. I can completely relate to the pain, fears and emotions your daughter went through as I have lost my ability to drive, work, take care of my own children and have been on anticonvulsive meds with no hope in sight. I went to OHSU and was evaluated in their neurology department. The doctors there felt my seizures weren't actually seizures but convulsions caused by the return of blood and oxygen to my brain after having syncope caused by an over active vaso vegal system. My cardiologist prescribed me Midodrin to raise my blood pressure so when my vaso vegal system lowers my bp it won't drop enough to make me faint. The theory is that if I don't faint I won't have the convulsions. So far so good! I've been doing a little better on the Midodrin and have not lost consciousness (I've come close though) or had convulsions.