Vaso-Vagal Discussion

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Re: 9 year old VVS with seizures

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From: Becca

Comments

They offer great support to both patients _and_ their families and they do have a video too of an attack which can help drs pinpoint a diagnosis - which possibly your dr can request.

I'm 30. I've had attacks since about 14. I can't drive, but I get by with public transport. If I stand too long, or get hot, or walk to long or get extremely upset or stressed out then I get ill. I found the diary I mentioned most helpful because it helped me find out possible triggers. If he has difficultly walking for long periods then buy a small portable stool - embarassing yes, but less so than having an attack. Lying down can ward off an attack - again embarrassing but less so than being ill. I can work and did work full time until just under a year ago. Now I work half time.

What he needs is _you_. I don't have family support and right now with my conditions being bad I'm struggling the one thing I want is support. Be there for him. Help him accept the condition for what it is - a pain and a part of his life but NOT his life.

There are meds that can help. Including betablockers and midodrine (both of which I tried but they didn't help me). Thing is the only way to find out what helps is to experiment.

The condition tends to be particular to the person so it can be hard to treat.

One thing, you and he will come across doctors who say this is his fault and with effort he can make it stop. This is _not_ true. All this means is the doctors do not know and are therefore blaming him.

Does any of that help you? Becca


This web site is not a substitute for a thorough medical evaluation and diagnosis of your vaso-vagal type symptoms.  Medical treatment and diagnosis is the only acceptable initial response to these serious symptoms since they might present from any number of life threatening and treatable illnesses. It is for you and your physician to rule out more serious illnesses; Please don't use this online forum as an alternative to getting responsible medical attention and being under the care of a physician for the duration of any unknown, suspected or dangerous vaso-vagal syndrome symptoms.
Last changed: August 03, 2007