Vaso-Vagal Discussion

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Dysautonomia

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From: Lisa

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I am so glad I found this website. I have been having episodes like many described here for about the past 12 years. It started one day when I was laying on the sofa eating a brownie. My husband was playing around and tried to grab it out of my mouth. When I reached out to get it back, all of a sudden I couldn't recognize my right arm and I felt as though I was disconnected from my body. My left arm was holding my right arm but it was like the circuitry was messed up and my left arm didn't realize what it was holding. It lasted about 10-20 sec in total and went away for approximately a year. From that point on I have been having episodes that are very similar with a component of feeling very lightheaded, disconnected, and numb and tingly in diferent parts of my body. I know my blood pressure drops into the low 50's on occassion because I have a bp cuff at home and monitor myself on occassion. I have been to many specialists: Neurologist, Cardiologist, Rheumatologist (I have RA), and another specialist who diagnosed me with dysautonomia. The treatment is exactly the same as listed here. I'm going to a spinal specialist who is going to follow-up on EP studies that were done previously. I was in a car accident about 4 years ago and I had severe whiplash. I'm wondering if there is any spinal damage that causes this type of response. I am also going to get a glucose tolerance test to check for diabetes as many people in my father's family are diabetic. I will let you know how the results turn out in case they come back positive. If they do, this may be an area needing testing if not tested by your MD already.


This web site is not a substitute for a thorough medical evaluation and diagnosis of your vaso-vagal type symptoms.  Medical treatment and diagnosis is the only acceptable initial response to these serious symptoms since they might present from any number of life threatening and treatable illnesses. It is for you and your physician to rule out more serious illnesses; Please don't use this online forum as an alternative to getting responsible medical attention and being under the care of a physician for the duration of any unknown, suspected or dangerous vaso-vagal syndrome symptoms.
Last changed: June 22, 2007