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From: Ken Moulder and Jayne Macey
We live in Southampton in the United Kingdom. We are writing on this forum to hopefully get some advice as to what to do. Ken is 45 and got his symptoms out of the blue 6 years ago. He had a tilt table test and was diagonosed as having Vaso Depressor Syncope. His symptoms are dizzy spells, tunnel vision, in which his pupils become differnet sizes, numb hands and feet, pains in chest, blood pressure drops rapidly, sinking feeling followed by fitting and then going unconcious even when he is laid down! Afterwards he is exhausted for about 24 hours after. From day to day he lives with head rushes, dizzy spells and lighter versions of all these symptons.
We have seen a specialist who told Ken that he was on the extreme end of the scale as most people have "simple faints" but Ken has quite violent seizures. The specialist however has not given us any advice or support. We would dearly like to talk to people or email people with the same diagnosis to find out how they coped and what medicine was given to help with the symptoms. In Britain no one seems to have heard of Vaso Depressor Syncope. Even Ken's GP has not heard of it. We are completely on our own and we wondered if there was anyone at all out there that could help us. My email address is email@example.com
Please email me. I am not sure how these things work but having read this forum I am pretty sure that in Amreica you have heard of this more than in Britain where it is just beginning to be recognised.