Vaso-Vagal Discussion

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Re: Other Conditions?

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From: Allison


YES! I was diagnosed with Neuocardiogenic syncope when I was 13 years old. At the time I also had irritable bowl syndrome, I was experiencing tremors in my hands, I had chronic headaches, I was sleeping about 18 hours a day, and had an unexplainable pain in my veins. Which sounds weird, but I have to rub my veins until the pain goes away. Mostly it is at the wrist, on the tops of my feet, and in my neck.

Also, for about 2 years straight, every time that I stood up, I would lose my vision for a couple of seconds because the blood wasn't getting to my brain. (I just thought this was normal.) But finally, after taking tons of salt tablets, this annoying symptom went away. (I was getting really tired of not seeing and running into things!)

Unfortunately my symptoms kept getting worse, and finally I was diangosed with fibromyalgia at the age of 19. Now I have chronic pain throughout my body. I also experience a lot of numbless and tingling, my tremor comes and goes, I am very sensitive to medications, and at times it gets too painful to walk.

After trying a couple dozen pain killers, muscle relaxers and tranquilizers, I finally found something that isn't so strong and does the trick pretty well (for me.) I am taking a combination of Lyrica for the pain, as well as Requip, which is good for Restless Leg Syndrome, and seems to be working well for my intense leg pain.

And the hearing loss? Yes, I have experienced that too. I guess I wouldn't call it hearing loss, maybe hearing deteriation. I can still hear, but know that I keep the volume louder than most to be able to hear the television.

For the longest time I haven't wanted to admit that this was stress related, but finally I'm realizing that, in my case, stress definately triggers my symtoms.

A couple of weeks ago I was supposed to go to an interview at the Ellen Degeneres Show, which I was totally excited about, until I passed out an hour before the interview. I tried to continue getting ready for the interview, and when I got to the car, I realized that it would be very stupid of me to drive right after passing out. So that ruined my chances at the job. Then, the next week I was getting ready for another interview at a radio station in LA and I passed out again! Luckily it was several hours before, and I was able to make it, and I got the job. But now I know that I really do need to get my stress and anxiety under control.

By the way, does anyone else get dizzy after eating? I don't like going out to eat because I end up eating big meals and I get dizzy because the blood all goes to my stomach.

One thing that I do worry about with my condition is the brain damage that I am inevitably experiencing from the loss of blood and oxygen to my brain. Sometimes after passing out I feel really stupid, and even end up hurting myself. A day after passing out I reached into the oven to pull out some muffins without using an oven mit! Yeah, I burned myself pretty bad. I experience stupid moments like this a couple days after passing out. I feel like I am turning into a complete moron at times.

Also, there has been some new research that shows the stress inflicted on your brain from chronic pain causes the brain the shrink up to 10% more than a normal person. (Readers Digest)

This really makes me upset becuase I fear that I am going to be a complete idiot by the time I am 30.

This web site is not a substitute for a thorough medical evaluation and diagnosis of your vaso-vagal type symptoms.  Medical treatment and diagnosis is the only acceptable initial response to these serious symptoms since they might present from any number of life threatening and treatable illnesses. It is for you and your physician to rule out more serious illnesses; Please don't use this online forum as an alternative to getting responsible medical attention and being under the care of a physician for the duration of any unknown, suspected or dangerous vaso-vagal syndrome symptoms.
Last changed: June 22, 2007