Vaso-Vagal Discussion

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vvs since age of 2, and im now 20. what i've gone through...

From: cw


hi, i've had this problem since i was 2, i would pass out in the high chair and it took quite a few years to get a diagnosis. i dont pass out a lot, it was only occasionally, but i find i have a lot of side disorders... i really wish i could peice together exactly why this has happened. we think maybe my valves didn't develop as fast as they could have resulting in various problems when i was a baby (including ear infections, kidney problems, a heart murmor, legs problems and vvs)

i now take florinef and salt my food and drink a lot of water. i remember doctors telling me i might grow out of it, and after a while i thought i was tricking myself and maybe these dizzy spells and feeling sick all the time were just "all in my head" so recently i stopped taking florinef until i passed out again, hurting my neck/back. so now i'm taking the meds again

i was diagnosed with vertical maxillary excess and i had surgery on my jaw, and it took over a year for it to heal completely. i also broke my foot and had to have surgery and a really obvious scar is there. i scar and bruise easily, leading us to believe my body just sucks at healing itself

i suffer from excessive sweating, unexplained heat surges, and then rapidly becoming freezing cold to the point i am shivering or chattering my teeth in a cool room, i get dizzy easily and the room will spin, and i am almost always tired or fatigued. i also get severe leg cramps from time to time. not sure if it is related but i also have bad ibs, and tendonitis... when does it all stop?

its funny how so many things can happen from one little disease. i dont understand how it all works. and i dont think anyone does and will for a long time...

This web site is not a substitute for a thorough medical evaluation and diagnosis of your vaso-vagal type symptoms.  Medical treatment and diagnosis is the only acceptable initial response to these serious symptoms since they might present from any number of life threatening and treatable illnesses. It is for you and your physician to rule out more serious illnesses; Please don't use this online forum as an alternative to getting responsible medical attention and being under the care of a physician for the duration of any unknown, suspected or dangerous vaso-vagal syndrome symptoms.
Last changed: June 22, 2007