Vaso-Vagal Discussion

[ Home | Contents | Search | Post | Reply | Next | Previous | Up ]

Unemployed due to vaso vagul-HELP!



My name is Tara and I am 25. I was diagnosed w/ vaso vagul back in 2000. I was in college and had decided to start running again as I had the year before. The very 1st time I got sick when I stopped running though-not while I was running? Anyway, that was the beginning. After that I had more episodes, in the shower in particular. I always felt it coming on just in time to get across the hall to my dorm room and bed before I passed out. I have always been sensitive to heat but never like this. The only time I had ever passed out before was when I was really ill with some bug when I was ten or so. I'd lose my vision, get sick to my stomach, feel very hot and sweaty, etc... No one took it seriously and it never happended again. I remember that I was sick for days though. Anyway, besides these new episodes I felt crappy all the time. I was soooo tired and light headed. I had trouble concentrating-even sometimes had trouble reading. I had blood tests done-normal. I went to a neurologist and had an MRI and an EEG done-normal. Next I went to a cardiologist and received all the usual tests-halter monitor, ECG, stress test, ultrasound of my heart, & the infamous tilt table test. I of course never had an episode during any of these tests. They did notice that my heart rate went up and down dramatically during the tilt table test-but I never passed out. I had good days and bad days. My doc said to try meds which freaked me out and I never went back. I was amazed that by being careful I managed my health and got better on my own. Now, years later I am worse than ever. I got a nasty bug that precipitated the onset of my old symptoms with a vengence. But it was different than before-less major episodes and more of an ongoing feeling of being dizzy and exhausted. I could sleep all day & night. I had some episodes of nearly fainting, etc... but mostly it was a never ending feeling of a mild version of an episode with exhaustion. I got my blood tested again-just in case-normal. My primary told me to go back to my cardiologist from 2000. Sure enough he told me I had all classic vaso vagul symptoms. I have tried Midodrine (to raise blood pressure) and that did next to nothing and I had side effects from it. The doc told me to exercise-yah right! When I am dizzy & ready to faint-I think not! I just went back yesterday to tell him that I weaned myself off of Midodrine because it didn't work-so he wants me to try Flourinef. In order to that I have to change my birth control (something to do with the estrogen level). This med. makes you retain salt & water! Great! I am going to try it of course, what else can I do. I am desparate for anything that might work. I have been going thru this for 3 months. I have lost my job. I can't file for unemployment because you have to actively pursue a job while you are on it. I can't work so how can I look for a job? I have had no money coming in since May. Is anyone else bad enough where they can't work a regular job? I might be able to do something from home-but what? Those jobs all seem like scams and 1/2 of them want money from YOU! I don't have any! Any suggestions? Please help with any advice you can give! Thank God for this website! Thank you! August 16th 2005

This web site is not a substitute for a thorough medical evaluation and diagnosis of your vaso-vagal type symptoms.  Medical treatment and diagnosis is the only acceptable initial response to these serious symptoms since they might present from any number of life threatening and treatable illnesses. It is for you and your physician to rule out more serious illnesses; Please don't use this online forum as an alternative to getting responsible medical attention and being under the care of a physician for the duration of any unknown, suspected or dangerous vaso-vagal syndrome symptoms.
Last changed: June 22, 2007