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Hi NY mom,
My daughter has experienced some of what you did. Her second episode I thought she was dead. The white lips are the really frightening thing.
The weird thing is she has something wrong with her rib cage. The orthopedics guy said it was condio something or other as in the cartlidge between the ribs.
Sge's always been a healthy kid, but had food allergies when little. There's so much on this board that connects. One person said they have to stay away from wheat. That was a huge trigger when she was little for bizarre behavior. The other odd thing is that her episode on Saturday right before it she had eaten mini-wheats.
She's also always had stomach problems due to food. I really feel for your family because that is a horrendous thing to see.
She had the whole gammit of tests. Heart beautiful. Low blood pressure though. They ordered prescription salt tablets which I did NOT make her take. They also said when you drink an enormous amount of water it depletes alot of things so I suggest you try Propel or something.
Maybe you were laying on that nerve all night, and that's what happened. The entire thing is frustrating.
Also alot of people see that it is stress related. BINGO. My daughter saw my dad die right in front of her. He had been healthy. Plus it was Christmas, and the para medics had him lying right under the tree. So now she says "Look how quickly someone can die, Mom". I have her a therapist for that.
Sorry I can't be more help. Just seems to be so many common things here.
I wish you the best. Especially since you have little ones, and God forbid you went out while you are home alone with them.
Let us know how you fair. Please.