Vaso-Vagal Discussion

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Re: big change in my v v episodes

From: Becca



Your new episodes sound like the ones I've had ever since my tilt table test. In fact they got so much worse after the tilt table test that I have been told never to have one done again.

Mine is also caused by strobing, though I have never been allowed an eeg (they are positive it is just vv and an eeg would be a waste of NHS money).

I did ask my dr why and he said that the condition can go through phrases of getting much worse and then much better. So hopefully it will get better!!!

As I live alone and have no family support I know exactly what you mean about losing your job and independence. I lost my last job because of this condition (they wouldn't trust me as they thought I was just doing it for attention and kept sending 'alerts' to everyone about me, as they refused to give me work to do personnel fired me), I was unemployed for months and unable to get a new position (because of vv) or any kind of disability. I've been forced to lie to my employer about my health so I can keep myself off the street (as I have nowhere else to go if I can't afford my rent). This condition is costing me a fortune. My drs just don't understand that because of the debt incurred as a result of this condition I just couldn't afford to live in any kind of housing on disability.


This web site is not a substitute for a thorough medical evaluation and diagnosis of your vaso-vagal type symptoms.  Medical treatment and diagnosis is the only acceptable initial response to these serious symptoms since they might present from any number of life threatening and treatable illnesses. It is for you and your physician to rule out more serious illnesses; Please don't use this online forum as an alternative to getting responsible medical attention and being under the care of a physician for the duration of any unknown, suspected or dangerous vaso-vagal syndrome symptoms.
Last changed: June 22, 2007