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From: rox
I know how you feel I was having an attack everyday!!!! SOmetimes two or three a day. It took a few years for mine to be diagnosed, too. I hear you. I fight with myself everyday to go to work. I am on Celexa. It helps but is not a "cure". I still have episodes (3-4 month give or take).
I don't know anyone else with this condition. I have seizure like activities with mine. Lack of sleep and flashing lights are triggers for me. I don't know why flashing lights do it, but they do. I have had 2 eegs and each time they flashed the lights at me, I had a massive attack ( but it is not epilepsy, so they say).
I know how you feel. I worry everyday that I won't be able to work anymore. I have comfort that my employer is very sympathetic.