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From: Christiane in VA
Welcome to the club girl,
It's comforting to know we're not alone, though being that only 1% of the population has this, I'm now not surprised that I haven't 'run' into people that have it... in person that is.
Good luck on your tilt table test, It'll probably be the next test I do as well to confirm officially, although being that my maternal grandmother, my mother and my father have had similar experiences and comparing my symptoms with other people's exact episodes, it doesn't take me another test to see what I have. All my EKG bla bla bla tests came back negative too. By the way, the tilt table test nerves the heck out of me only because I don't look forward at all to fainting which I'm sure I will... god help me. *sigh*
Hang in there!
Christiane in VA