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Hi Linda I can relate to the anxiety associated with your symptoms. I am 31. At age 21 I had a stroke unexpectedly. Dr's found a birth defect in my heart at this time and proceeded to repair it. Since then I have had VVS. For years I would have the symptoms and was convinced that I was "HAVING THE BIG ONE" and thought I was going to die. Dr's couldn't find any reason for the light headedness or my "spells" and kept running test after test. It has taken 10 years to finally be given an accurate DX.
I have found great comfort in this forum as I know I'm not alone, or crazy. I do alot of self talk now, and instead of trying to control it, because I can't, I tell myself that it won't last long and I know that I will wake up.
If you or anyone would like to chat more about this condition I can be reached at email@example.com