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From: Heather In Arizona
I was Diagnosed with this a year ago in August of 2003 after bouncing from doctor to doctor for about a half year. Finanlly I went to an Arrythmia specialist who sent me to do the tilt table test, which is when I was diagnosed. While it is nice to finally have a name to what I have and realize its not all in my head, my symptoms continue to get worse. I am going to the Cleveland Clinic in July of this year (2004) where they did a bunch of research on this, in hopes of getting help because this is not a really known about medical condition. Living in Arizona and being Female are probably huge contributors to my issues because of the heat in the summer, and my monthly menstraul cycle. I was curious if there are support groups, or any other doctors who might specialize in this area.