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From: crazycrutchgirl@hotmail.com (england)
I am an 18 year old girl from England. I was diagnosed with VV over two years ago after having episodes of fainting since i was 10. i was never given the tilt table test as my neurologist considered it dangerous (apparently some doctors are very against it over here)I have spells that start off with symptoms similar to migraines: blurred vision, tingling hands and 'flashing' lights. then i get very thirsty and have a great desire to drink and lie down. Most of the time i am ok providing i avoid my triggers. however there are times when i faint two or three times in a day. i was told by my neurologist that these were classic symptoms of VV. However last month i had a nerve conduction test (which was for a foot problem - nothing to do with VV) however the neurologist who conducted the test told me that if i did have VV then it would have showed up on a nerve conduction test - which it didn't. Does anyone know anything about this? Is it possible to have VV and it not show up on such tests? Are there any other explinations for my symptoms? I am also taking high doses of codeine phosphate for my foot injury - could this have a link with my VV? if anyone has any answers please get in touch. my doctors don't seem to care - they say i have to live with it and that one day i might grow out of it so i just have to avoid my triggers and try to get on with life. The only advice they gave me was to increase my salt intake and ensure that if i have an attack to lie down and raise my feet above my head to prevent fitting. Any answers to these questions or advice would be greatly received